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Word of Mouth

Tourette Syndrome

February 12, 202627 min · 5,602 words

Show notes

Michael Rosen talks to Ione Georgakis from Tourette Action about about her personal and professional experience of Tourette Syndrome and vocal tics. How and why do tics happen, and what are some of the myths and misunderstandings around the syndrome? Produced for BBC Audio Bristol by Sally Heaven, in partnership with the Open University.

Highlighted moments

I used to tick haberdashery and sycophant. And I had to Google what those words were. I had no idea. But they'd gone in somewhere at some point in my existence. I'd read it. I'd seen it. I'd heard it. And it went in. And it came back out completely in the wrong context, of course.
I've recently started using the term Tourette's syndrome because people tend to think of that maybe as more valid. If I go Tourette's, people go, oh, yeah, we've all got Tourette's. Bloody hell. And I go, no, no, I have Tourette's syndrome.
I have come across professionals who have said he fits the criteria for Tourette's, but we're not going to give that diagnosis. It's incredibly stigmatised. We don't want it to impact his life. And I say to them, this is on you. That stigma lies in you.
I found if I could add something to the end of it or adapt the word and make it slightly less shocking. Give me an example. OK. We'll see if this can be included. What did we have? We had country lanes. We had for coughs and colds take Benadryl. We had Fatima Whipbreads.

Transcript

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